Open to opportunities

Maria Del Mar Monge

@mariadelmarmonge

Bilingual healthcare and genetics support specialist delivering HIPAA-compliant patient concierge care and rare-disease guidance.

Costa Rica

Message

What I'm looking for

I’m looking for a bilingual patient-facing role where I can coordinate care with HIPAA-compliant systems, deliver empathetic communication, and support rare-disease/genetics journeys. I thrive in fast-paced, collaborative clinical environments.

I’m a bilingual Healthcare & Genetics Support Specialist focused on helping patients and families navigate complex medical and genetic journeys with clear, empathetic communication. I combine patient concierge experience with disciplined intake and follow-up workflows to support U.S.-based clinic operations.

In my LeadJuice role as a Patient Concierge-Bilingual Client Specialist, I served as a primary point of contact for questions related to care while maintaining confidential patient records in HIPAA-compliant CRM systems. I coordinate clinical intake, appointment scheduling, and follow-ups, guiding patients through available medical services and helping them find options aligned with their individual medical needs.

Since Mar 2023, my patient advocacy work has centered on rare diseases—especially amyloidosis. I support patient and family communication, contribute to phenotype identification using Independent Human Phenotype Ontology (HPO), and help patients understand testing options and navigate healthcare pathways with cultural competency.

I also build community and long-term support: I initiated a patient support group that became part of the Costa Rican Rare Disease Federation and contributed to early groundwork for what is now in process as the Costa Rican Amyloidosis Association. With ongoing genomics education (NHS England) and HIPAA compliance training, I bring a continuous-learning mindset to patient-centered clinical research support.

Experience

Work history, roles, and key accomplishments

Current

Patient Advisor & Receptionist

Current

Aesthetic Clinic (Hair Restoration)

Jan 2026 - Present (3 months)

Guided patients through hair restoration consultations, treatment planning, and follow-up care while managing scheduling and ongoing communication. Educated patients on hair restoration procedures and set clear expectations to ensure informed decision-making.

Consultation Treatment Planning Patient Follow Up Care Scheduling Patient Education Hair Restoration Support Confidentiality Customer Service

Current

Patient Advocacy & Rare Disease Support

Current

Costa Rican Rare Disease Federation

Mar 2023 - Present (3 years 1 month)

Supported patients and families affected by rare diseases with a focus on amyloidosis, guiding them through information and available testing options. Performed phenotype identification using the Human Phenotype Ontology (HPO) and helped develop patient support initiatives aligned with federation efforts.

Rare Disease Support Phenotypes Human Phenotype Ontology (HPO)Patient Support Group Facilitation

Patient Concierge Specialist

LeadJuice

Oct 2024 - Jul 2025 (9 months)

Provided bilingual patient concierge services for U.S. medical clinics, including clinical intake, appointment scheduling, and follow-ups for patients supporting genetics and rare disease needs. Maintained HIPAA-compliant records in CRM systems and collaborated with clinical and administrative teams to support efficient workflows.

Patient Concierge Clinical Intake Appointment Scheduling Care Coordination HIPAA compliance CRM Systems Bilingualism Rare Disease Support