Action for M.E.

The journey of Action for M.E. began in 1987, born from a grassroots movement to support those affected by Myalgic Encephalomyelitis (M.E.). Initially established as The M.E. Action Campaign by its founders Martin Lev, Sue Findlay, and Clare Francis, the organization was driven by the urgent need to address the significant challenges and lack of understanding surrounding the condition. In its early days, it functioned primarily as a pressure group, a passionate voice advocating for the rights and needs of individuals grappling with this debilitating illness. A pivotal moment in its history came in 1989 when the decision was made to transition from a campaign group into a registered charity, a move that solidified its commitment to providing long-term support and driving meaningful change. This transformation was marked by a name change to Action for M.E. in 1993, a name that has since become synonymous with hope and advocacy for the M.E. community in the UK.

Under the leadership of figures like Martin Lev, who became Chairman in 1992, the charity grew to become the largest of its kind for M.E. in the UK. Over the years, Action for M.E. has remained steadfast in its mission: to empower people with M.E. to fulfil their potential and secure the care and support they need, while tirelessly working towards a greater understanding of the illness and, ultimately, a cure. This mission is pursued through a holistic approach that encompasses providing lifeline support and unique healthcare services, amplifying the voices of those with M.E. in government, and leading on breakthrough biomedical research. The organization's work is deeply rooted in the lived experiences of the community it serves, with many of its trustees and staff having direct experience with M.E. themselves. This empathetic foundation fuels their collaborative and courageous efforts to tackle the inequities faced by people with M.E. and to build a future where everyone affected by the condition receives the respect, treatment, and care they deserve.