I am looking for opportunities in community engagement, patient advocacy and patient recruitment
Lumiere Bukasa
@lumieresidonie
Patient & Community Engagement Specialist with a passion for advocacy & engagement
What I'm looking for
I am a dedicated Patient and Community Engagement Specialist with over 7 years of experience leading equity-driven initiatives across healthcare and education sectors. My journey has been defined by a commitment to humanizing healthcare through strategic storytelling and patient advocacy, ensuring that diverse voices are heard and valued. I have successfully built trust with various communities, driving inclusive solutions that prioritize patient needs.
As the Founder and Principal Consultant at Novry, I pioneered a consultancy that focuses on patient-powered strategies and storytelling within the biotech and healthcare industries especially for chronic and rare diseases. My work includes advising clients on culturally responsive engagement and fostering deep relationships with patient communities. I have a proven track record of collaborating with organizations to support rare disease communities and advocating for their needs through narrative-driven engagement plans.
My previous roles have equipped me with the skills to manage stakeholder relationships effectively, advocate for underserved populations, and facilitate community discussions. I am passionate about leveraging my expertise to create impactful change and improve health equity for all.
Experience
Work history, roles, and key accomplishments
Founder & Principal Consultant
Novry
Mar 2025 - Present (4 months)
Founded a category-defining consultancy pioneering patient-powered strategy, storytelling, and science across biotech, pharma, and healthcare systems. Advised biotech clients on humanizing patient engagement through culturally responsive storytelling, grassroots strategy, and equity-driven innovation.
Patient Advocacy and Engagement Specialist
Leapcure
Nov 2024 - May 2025 (6 months)
Partnered with global and national organizations to support rare disease communities, including thyroid eye disease and metastatic liver cancer. Managed six rare disease accounts, developing narrative-driven community engagement plans and successfully enrolling rural and hard-to-reach patients in clinical trials.
Community Engagement Specialist
Denver Public Schools
May 2023 - Jun 2024 (1 year 1 month)
Managed stakeholder relationships to support migrant and underserved students and faculty. Organized monthly forums for community discussion on student advocacy and education policy, facilitating collaboration between parents, community members, and district leadership.
Program Manager
Northeast Early College
May 2021 - Jun 2023 (2 years 1 month)
Oversaw the academic journey of 350+ associate degree students, providing advising, counseling, and problem-solving support from freshman to senior year. Managed relationships among universities, high schools, professors, and community organizations to ensure smooth program operations and student success.
Community Outreach Specialist
Denver Rescue Mission/Catholic Charities
Dec 2018 - Mar 2020 (1 year 3 months)
Supported intake and case management for 600+ unhoused individuals, connecting them to essential services including food, shelter, clothing, and healthcare. Facilitated cross-sector collaborations with city government offices, school districts, and advocacy groups to secure resources and deliver wraparound support during the pandemic.
Founder, CEO & Global Strategy Lead
Education ForAfrika
Sep 2017 - May 2022 (4 years 8 months)
Founded and directed a nonprofit focused on health equity, global health education, and community empowerment in underserved African populations. Partnered with healthcare providers in DRC and the U.S. to improve health literacy, access, and advocacy for 200+ community members.
Education
Degrees, certifications, and relevant coursework
University of Denver
Bachelors, International Relations
Focused on Global Health & Human Rights, gaining a comprehensive understanding of international relations within these critical areas. Developed expertise in human-centered research and qualitative insight translation.
Tech stack
Software and tools used professionally
Availability
Location
Authorized to work in
Salary expectations
Social media
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