About National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD) is a nonprofit organization dedicated to improving the lives of individuals affected by rare diseases. Founded in 1983, NORD aims to create practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Every day, our organization elevates care, advances research, and drives policy through a holistic approach that empowers the rare disease community.
NORD's mission focuses on several key areas: providing assistance with medication access and diagnostics through patient assistance programs, offering comprehensive educational resources about rare diseases, and advocating for policy changes that support those affected by rare disorders. Our IAMRARE® program allows individuals to share their experiences and participate in research, helping to inform better treatment options. With over 330 patient advocacy organizations as partners, NORD works collaboratively to ensure the rare disease community is seen, heard, and valued. We strive to enhance the quality of life for these individuals and their families by addressing their unique needs and championing for equitable access to care and innovative therapies.
FAQs
- When was National Organization for Rare Disorders founded?
- National Organization for Rare Disorders was founded in 1983.
- Who is the CEO of National Organization for Rare Disorders?
- Pamela K. Gavin is the CEO.
- What industries or markets does National Organization for Rare Disorders operate in?
- National Organization for Rare Disorders operates in the following markets: Nonprofit Organizations, Healthcare, Rare Diseases, Patient Advocacy, Medical Research, Pharmaceutical Assistance, Health Policy Advocacy, Educational Resources, Community Support Services, and Therapeutic Development.
- How many employees does National Organization for Rare Disorders have?
- National Organization for Rare Disorders has 51-200 employees.
- Where does National Organization for Rare Disorders have employees?
- National Organization for Rare Disorders has employees in United States.
- Does National Organization for Rare Disorders support remote work or working from home?
- Yes, National Organization for Rare Disorders is a remote-friendly company.
- Does National Organization for Rare Disorders offer a four-day work week?
- No, National Organization for Rare Disorders does not offer a four-day work week.
- What is National Organization for Rare Disorders's website?
- National Organization for Rare Disorders's website is rarediseases.org.
United States