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Genetix BiotherapeuticsGB

Associate Director, Patient Navigator

Genetix Biotherapeutics is a biotechnology company developing and commercializing gene therapies for rare genetic diseases, including sickle cell disease, β-thalassemia, and cerebral adrenoleukodystrophy, operating from Somerville, Massachusetts.

Genetix Biotherapeutics

Employee count: 201-500

Salary: 175k-185k USD

United States only

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About Genetix Biotherapeutics

At Genetix Biotherapeutics every role has meaning, every team member is respected, and every day is a chance to make a difference. When you join Genetix, you're not just landing a new role, you become part of a company that's pursuing curative gene therapies to give patients and their families more days. We are doers, thinkers and collaborators who embrace and live by our values:

Our innovation is rooted in the diversity of our teams and results are achieved through cooperation and the integration of multiple viewpoints. This is personal and we approach every challenge with radical care.

SUMMARY

Genetix Biotherapeutics' Market Access, Advocacy + Policy (MAAP) team is dedicated to helping patients access our innovative gene therapies. As a member of the Market Access Advocacy and Policy team (MAAP) you will be working alongside some of the most committed, creative, and experienced individuals in the cell and gene therapy industry to break new ground so that patients can access our FDA-approved gene therapies—patients who often have no therapeutic alternatives to battle progressive, debilitating, and life-shortening diseases. We are passionate about the science behind our gene therapies and the tremendous value we believe these one-time administered, potentially curative therapies bring to patients, their families, the healthcare system, and society overall.

ABOUT US

As a member of the Patient Services team, you will have the opportunity to provide education, guidance and support to patients who are enrolled in the company’s patient support services program. In this role, you offer personalized assistance to each patient, and their caregivers, throughout the gene therapy treatment journey.

The Associate Director, Patient Navigator serves as a trusted partner to patients, caregivers, and Qualified Treatment Centers (QTCs), while also collaborating cross-functionally to optimize program operations. This role brings expertise, strategic oversight, and deep empathy to drive patient-centered care and operational excellence.

KEY RESPONSIBILITIES

Patient & Caregiver Education

  • Provide high-touch, education, support & resources to patients and caregivers regarding the gene therapy treatment process, including pre-treatment considerations, treatment day logistics, and post-treatment expectations.
  • Educate the patient on their gene therapy coverage based on their benefits and the steps needed to gain prior authorization to ensure understanding of the process for access.
  • Assess patient and caregiver needs, tailoring resources and education to ensure understanding, confidence, and support.
  • Serve as a trusted point of contact for patients, ensuring questions are answered in a compassionate and compliant manner.

Case Management & Navigation

  • Guide patients through the treatment journey, coordinating support services such as travel, lodging, reimbursement, and offering connection to resources.
  • Identify potential barriers to treatment and implement proactive strategies to resolve access challenges in collaboration with cross-functional partners.
  • Monitor patient milestones and adherence to treatment timelines, ensuring delivery of high-quality and timely support.

Stakeholder Engagement

  • Educate internal and external stakeholders on the program to drive awareness.
  • Work with Qualified Treatment Centers (QTCs) to monitor patient status and facilitate patient support.
  • Partners with QTCs, healthcare providers, and advocacy organizations to enhance patient and caregiver education, increase awareness of program services, and support treatment readiness.
  • Represent Patient Services at community-based organization (CBO) events, patient advocacy conferences, and industry meetings.
  • Gather insights from QTC visits, CBO interactions, and conference attendance to inform program design, messaging, and outreach strategy.
  • Communicate key insights and patient trends back to internal stakeholders to continuously refine engagement approaches and optimize program design.

Program Operations & Continuous Improvement

  • Contribute to the design and implementation of patient support initiatives, work instructions, patient-facing resources, and best practices.
  • Utilize data, analytics, and patient feedback to identify opportunities for program improvement and drive excellence.

QUALIFICATIONS:

  • BA/BS with a minimum of 10 years of pharmaceutical/biotech patient services experience with demonstrated expertise in access/reimbursement and complex case management. Registered Nurse (RN) and Gene therapy experience is a plus.
  • Direct experience working with patients and/or caregivers.
  • Strong knowledge of payer systems, reimbursement processes, and patient assistance resources.
  • Exceptional communication skills, with the ability to engage patients, caregivers, and healthcare providers with empathy and clarity.
  • Deep empathy, resilience, creativity in problem-solving, attention to detail, and action oriented.
  • Proficiency in data analysis and application of performance metrics to inform program improvements.
  • Knowledge of regulatory and compliance guidelines for industry and ability to evaluate unique scenarios in the context of program SOPs, policies and OIG requirements.

CORE COMPETENCIES:

  • Patient-first mindset with deep empathy and cultural sensitivity.
  • Resilience and composure in high-stakes, emotionally complex situations.
  • Creative problem-solving and resourcefulness when navigating access barriers.
  • Action-oriented with a bias toward resolving issues quickly and thoroughly.
  • Strong organizational skills with the ability to manage competing priorities across field and office responsibilities.
  • Collaborative approach with the ability to build trust across internal teams, QTC staff, and external partners.

Additional Information

The pay transparency range provided below is based on what we believe is a reasonable estimate for the base salary pay range for this job at the time of posting. We may ultimately pay more or less than the posted range, and the range may be modified in the future. This role is eligible for an annual bonus and long-term incentive. Actual base salary pay will be based on several factors, including but not limited to experience, skills, relevant education/qualifications, external market, internal equity, and other job-related factors permitted by law.

Genetix’s total rewards package also provides employees with a comprehensive and competitive benefits suite to support a variety of employee needs. These benefits include comprehensive health, life and disability insurance, employer-matched 401(k) plan, lifestyle spending account, flexible time-off + paid holidays and winter holiday period, tuition reimbursement & loan repayment assistance, paid parental leave, paid onsite parking, commuter subsidy, and much more.

Pay Transparency
$175,000—$185,000 USD

Genetix is proud to be an equal opportunity employer, seeking to create a welcoming and diverse environment. All applicants will receive consideration for employment without regard to race, color, religion, gender, gender identity or expression, sexual orientation, national origin, genetics, disability, age, veteran status or any other applicable legally protected characteristics.

About the job

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Posted on

Job type

Full Time

Experience level

Salary

Salary: 175k-185k USD

Education

Bachelor degree

Experience

10 years minimum

Location requirements

Hiring timezones

United States +/- 0 hours

About Genetix Biotherapeutics

Learn more about Genetix Biotherapeutics and their company culture.

View company profile

Genetix Biotherapeutics is a commercial-stage biotherapeutics company dedicated to transforming lives through curative gene therapies for patients with rare, genetic diseases. Formerly known as bluebird bio, the company has returned to its foundational roots while sharpening its focus on delivering life-changing genetic therapies to patients who need them most.

The company has developed three FDA-approved genetic therapies for sickle cell disease, β-thalassemia, and cerebral adrenoleukodystrophy (CALD). These first-in-class, one-time administered therapies treat the underlying cause of disease and are designed using the patient's own blood stem cells. After more than 30 years of research and clinical development, these therapies represent a new frontier in treating serious rare genetic conditions.

On June 2nd, 2025, Genetix Biotherapeutics marked a pivotal moment by announcing a newly appointed leadership team and transitioning to a privately held company. This move has strengthened the organization both financially and operationally, positioning it to unlock the full potential of its transformative genetic therapies through improved commercial execution and expanded patient access.

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Genetix Biotherapeutics

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